Registered charity 1110631
Cystinosis Family Support Network
What it does
N/A
Its charitable purposes
1. THE RELIEF OF PATIENTS DIAGNOSED WITH CYSTINOSIS;2. THE PROVISION OF NON MEDICAL ADVICE TO SUCH PATIENTS AND TO THEIR FAMILIES AND FRIENDS;3. THE PROVISION IN THE INTERESTS OF SOCIAL WELFARE OF RECREATIONAL FACILITIES AND EVENTS FOR SUCH PATIENTS;4. THE PROMOTION OF RESEARCH INTO THE CAUSES AND TREATMENT OF CYSTINOSIS ON TERMS THAT THE RESULTS OF SUCH RESEARCH ARE PUBLISHED.
Causes
- What it works on
- Health and saving lives
- Who it helps
- Children and young people
- How it works
- Provides staff or volunteers
- Provides services
- Provides advocacy, advice or information
- Sponsors or carries out research
Where it works
- Elsewhere
- Throughout England and Wales
Area of benefit in its governing document: Not Defined
Income and spending
In the year ending 31 December 2025, it had income of £0 and spent £0.
| Year ending | Income | Spending | Paid staff | Volunteers |
|---|---|---|---|---|
| 31 December 2025 | £0 | £0 | Not reported | Not reported |
| 31 December 2024 | £0 | £0 | Not reported | Not reported |
| 31 December 2023 | £0 | £0 | Not reported | Not reported |
| 31 December 2022 | £0 | £0 | Not reported | Not reported |
| 31 December 2021 | £0 | £0 | Not reported | Not reported |
Grants awarded to it, published on 360Giving
No grants to this charity appear in 360Giving data.
Trustees
2 trustees run the charity.
- John William Watkins
- Lisa Jane Watkins
Filing record
Of the last 5 annual returns that were due, 5 arrived by the deadline.
| Year ending | Due | Annual return | Accounts |
|---|---|---|---|
| 31 December 2025 | 31 October 2026 | Received 19 August 2026, 73 days early | Not required |
| 31 December 2024 | 31 October 2025 | Received 4 October 2025, 27 days early | Not required |
| 31 December 2023 | 31 October 2024 | Received 7 October 2024, 24 days early | Not required |
| 31 December 2022 | 31 October 2023 | Received 18 October 2023, 13 days early | Not required |
| 31 December 2021 | 31 October 2022 | Received 10 August 2022, 82 days early | Not required |
About this charity
- Charity number
- 1110631
- Status
- Registered
- Registered with the Commission
- 28 July 2005
- Governing document
- CONSTITUTION ADOPTED 19 MAY 2005
- Council area of its contact address
- Conwy
Sources
- Register details, income, spending, trustees and filing dates: Charity Commission for England and Wales, register of charities. Loaded by OpenEconomy on 2 November 2026.
- Grants awarded: 360Giving open grants data, from funders that publish there, as loaded by OpenEconomy.