Wales Orphan and Rare Lung Disease (World)

The preservation and protection of good health for the public benefit, by promoting the awareness and understanding of rare lung disease in West Wales.WORLD promotes discussion, engagement, support, knowledge and research.

In the charity's own words, from the register.

In Wales

• Throughout Wales

The places the charity told the Commission it works in.

In the year ending 1 April 2025, it had income of £1,782 and spent £496.

Figures as the charity reported them to the Charity Commission. Staff and volunteer numbers are only asked of charities with income over £10,000. A year with no row was not reported.

Separate measures from the charity's own returns and accounts, each with its year. Read them together: no single measure says how well a charity is run.

Income over time

Down 71%, from £6,046 in the year to 1 April 2021 to £1,782 in the year to 1 April 2025.

Spending against income

It spent 28% of its income in the year to 1 April 2025. It spent more than its income in 1 of the 5 years shown.

From the annual returns the charity filed with the Charity Commission. The largest funder comes from its accounts, read by AI.

Government grants in the year ending 1 April 2025: Not reported. Government contracts: Not reported.

From the charity's annual return to the Charity Commission, which asks every charity with income over £10,000 how much came from government grants and contracts. It does not say which part of government. These totals are separate from the named funders read from its accounts and the grants published on 360Giving, and are not added to them.

No grants to this charity appear in 360Giving data.

Only funders that publish their grants to 360Giving are included, and many do not. These are amounts funders awarded, which can differ from what the charity received in a given year, so they are shown apart from the accounts figures above.

8 trustees run the charity.

• Michelle DunningChairAppointed 1 November 2025
• Dr Keir Lewis ProfessorAppointed 27 February 2018
• Gethin JamesAppointed 5 December 2025
• Graham EvansAppointed 23 October 2018
• Joseph AnnandaleAppointed 27 February 2018
• Leslie DaleAppointed 5 December 2025
• Marie JamesAppointed 26 August 2022
• Sylvia EvansAppointed 23 October 2018

Trustees are responsible in law for the charity. Names are as they appear on the public register.

Of the last 5 annual returns that were due, 1 arrived by the deadline.

Charities with income over £10,000 send an annual return within 10 months of their year end, and those over £25,000 also send their accounts. Smaller charities only update their income and spending on the register. The dates are when the Commission received each document.

Charity number

1177810

Status

Registered

Registered with the Commission

4 April 2018

Governing document

CIO - FOUNDATION Registered 04 Apr 2018

Website

joinusatworld.comAs the charity gave it on the register.

Council area of its contact address

Carmarthenshire

• Register details, income, spending, trustees and filing dates: Charity Commission for England and Wales, register of charities. Loaded by OpenEconomy on 2 November 2026.
• Grants awarded: 360Giving open grants data, from funders that publish there, as loaded by OpenEconomy.

• This charity on the Charity Commission register
• 360Giving open grants data
• This charity on OpenEconomy

• OpenCouncil: Carmarthenshire Council's meetings and decisions
• OpenEconomy: Carmarthenshire's economy in figures
• OpenSenedd: the Members of the Senedd for Sir Gaerfyrddin