Alk Positive Lung Cancer (UK)
What it does
We provide a support network in the UK for patients with ALK-positive lung cancer and their families. We provide advice and information so that patients can be empowered to have meaningful conversations with their healthcare professionals. We advocate on their behalf at a national level so that patients receive a high level of care wherever they live in the UK
Its charitable purposes
TO RELIEVE SICKNESS AND TO PRESERVE AND PROTECT GOOD HEALTH OF UK ANAPLASTIC LYMPHOMA KINASE (ALK) POSITIVE LUNG CANCER PATIENTS BY:-A. PROVIDING AN INFORMATION RESOURCE, IN PARTICULAR ACCESS TO INFORMATION ABOUT LATEST DEVELOPMENTS AND CLINICAL TRIALS;B. IDENTIFYING AND LOCATING UK ALK PATIENTS AND OFFERING SUPPORT AND GUIDANCE ON THE LOCATION OF UK ALK SPECIALISTS AND SERVICES;C. LIAISING WITH AND INFLUENCING DECISION MAKERS, E.G. NICE, NHS, DVLA;D. RAISING AWARENESS OF ALK LUNG CANCER, PARTICULARLY AMONGST THE MEDICAL PROFESSION SO AS TO PROMOTE THE BEST TREATMENT FOR PATIENTS;E. LIAISING WITH RELEVANT ORGANISATIONS, IN PARTICULAR ROY CASTLE LUNG CANCER FOUNDATION AND THE PHARMACEUTICAL INDUSTRY;F. RAISING FUNDS FOR THE ABOVE PURPOSES.
Causes
- What it works on
- Health and saving lives
- Who it helps
- Other defined groups
- How it works
- Provides advocacy, advice or information
Where it works
- Elsewhere
- Throughout England and Wales
Income and spending
In the year ending 31 December 2025, it had income of £273,675 and spent £217,809.
| Year ending | Income | Spending | Paid staff | Volunteers |
|---|---|---|---|---|
| 31 December 2025 | £273,675 | £217,809 | Not reported | 25 |
| 31 December 2024 | £220,195 | £152,874 | Not reported | 13 |
| 31 December 2023 | £182,857 | £201,511 | Not reported | 19 |
| 31 December 2022 | £130,582 | £114,553 | Not reported | 18 |
| 31 December 2021 | £164,415 | £107,572 | Not reported | Not reported |
Financial position
Separate measures from the charity's own returns and accounts, each with its year. Read them together: no single measure says how well a charity is run.
- Income over time
- Up 66%, from £164,415 in the year to 31 December 2021 to £273,675 in the year to 31 December 2025.
- Spending against income
- It spent 80% of its income in the year to 31 December 2025. It spent more than its income in 1 of the 5 years shown.
Government funding, as the charity reported it
Government grants in the year ending 31 December 2025: Not reported. Government contracts: Not reported.
| Year ending | Government grants | Government contracts |
|---|---|---|
| 31 December 2025 | Not reported | Not reported |
| 31 December 2024 | Not reported | Not reported |
| 31 December 2023 | Not reported | Not reported |
Grants awarded to it, published on 360Giving
No grants to this charity appear in 360Giving data.
Trustees
6 trustees run the charity.
- Debra Louise MontagueChair
- Andrew Thomson McKay
- Geoffrey Paul Otterman
- Graham Herbert Lavender
- Rachel Rowan
- Traceydawn White
Filing record
Of the last 5 annual returns that were due, 5 arrived by the deadline.
| Year ending | Due | Annual return | Accounts |
|---|---|---|---|
| 31 December 2025 | 31 October 2026 | Received 19 October 2026, 12 days early | Received 19 October 2026 |
| 31 December 2024 | 31 October 2025 | Received 18 September 2025, 43 days early | Received 18 September 2025 |
| 31 December 2023 | 31 October 2024 | Received 15 October 2024, 16 days early | Received 15 October 2024 |
| 31 December 2022 | 31 October 2023 | Received 19 October 2023, 12 days early | Received 19 October 2023 |
| 31 December 2021 | 31 October 2022 | Received 25 July 2022, 98 days early | Received 25 July 2022 |
About this charity
- Charity number
- 1181171
- Status
- Registered
- Registered with the Commission
- 14 December 2018
- Governing document
- CIO - ASSOCIATION Registered 14 Dec 2018
- Website
- www.alkpositive.org.uk
- Council area of its contact address
- Monmouthshire
Sources
- Register details, income, spending, trustees and filing dates: Charity Commission for England and Wales, register of charities. Loaded by OpenEconomy on 2 November 2026.
- Grants awarded: 360Giving open grants data, from funders that publish there, as loaded by OpenEconomy.