Ataxia aware

A patients focused charityRaising Awareness of Ataxia.Sharing Ataxia, associated rare disease, movement and health information to Empower the patient, family member, carer of this Life limiting rare disease.Collaborating within these communities to advance and amplify the Patients voice within the health arena.Participating in fundraising events to allow this task

In the charity's own words, from the register.

Elsewhere

• Throughout England and Wales

The places the charity told the Commission it works in.

In the year ending 30 March 2025, it had income of £348 and spent £561.

Figures as the charity reported them to the Charity Commission. Staff and volunteer numbers are only asked of charities with income over £10,000. A year with no row was not reported.

Separate measures from the charity's own returns and accounts, each with its year. Read them together: no single measure says how well a charity is run.

Income over time

Down 84%, from £2,161 in the year to 30 March 2021 to £348 in the year to 30 March 2025.

Spending against income

It spent 161% of its income in the year to 30 March 2025. It spent more than its income in 3 of the 5 years shown.

From the annual returns the charity filed with the Charity Commission. The largest funder comes from its accounts, read by AI.

Government grants in the year ending 30 March 2025: Not reported. Government contracts: Not reported.

From the charity's annual return to the Charity Commission, which asks every charity with income over £10,000 how much came from government grants and contracts. It does not say which part of government. These totals are separate from the named funders read from its accounts and the grants published on 360Giving, and are not added to them.

No grants to this charity appear in 360Giving data.

Only funders that publish their grants to 360Giving are included, and many do not. These are amounts funders awarded, which can differ from what the charity received in a given year, so they are shown apart from the accounts figures above.

3 trustees run the charity.

• Alan John ThomasChairAppointed 15 June 2019
• Dawn MorganAppointed 15 June 2019
• Stephen Karl TreharneAppointed 15 June 2019

Trustees are responsible in law for the charity. Names are as they appear on the public register.

Of the last 5 annual returns that were due, 4 arrived by the deadline.

Charities with income over £10,000 send an annual return within 10 months of their year end, and those over £25,000 also send their accounts. Smaller charities only update their income and spending on the register. The dates are when the Commission received each document.

Charity number

1184030

Status

Registered

Registered with the Commission

21 June 2019

Governing document

CIO - FOUNDATION Registered 21 Jun 2019 as amended on 16 May 2026

Website

www.ataxia-aware.orgAs the charity gave it on the register.

Council area of its contact address

Carmarthenshire

• Register details, income, spending, trustees and filing dates: Charity Commission for England and Wales, register of charities. Loaded by OpenEconomy on 2 November 2026.
• Grants awarded: 360Giving open grants data, from funders that publish there, as loaded by OpenEconomy.

• This charity on the Charity Commission register
• 360Giving open grants data
• This charity on OpenEconomy

• OpenCouncil: Carmarthenshire Council's meetings and decisions
• OpenEconomy: Carmarthenshire's economy in figures
• OpenSenedd: the Members of the Senedd for Sir Gaerfyrddin