Registered charity 1215837

Tommy's Bloom Syndrome UK

What it does

We support individuals and families affected by Bloom syndrome in the UK by helping them access and attend the specialised clinic at Guy's and St. Thomas hospital. We assist individuals and families affected by Bloom syndrome in the UK in making connections with each other to reduce isolation and build community.

In the charity's own words, from the register.

Its charitable purposes

TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF PATIENTS WITH BLOOM SYNDROME IN THE UNITED KINGDOM BY: 1. THE PROVISION OF INFORMATION, SUPPORT, EDUCATION AND PRACTICAL ADVICE TO PATIENTS, THEIR FAMILIES AND THEIR CARERS AS WELL AS RAISING AWARENESS OF ALL MATTERS RELATING TO BLOOM SYNDROME WITH THE GENERAL PUBLIC. 2. PROMOTING AND SUPPORTING RESEARCH PROJECTS INTO THE CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF BLOOM SYNDROME AND DISSEMINATING THE RESULTS OF SUCH RESEARCH.

From its governing document, as recorded on the register.

Causes

What it works on: General charitable purposes
Disability
Who it helps: Children and young people
Disabled people
How it works: Provides services
Provides advocacy, advice or information

The charity chose these from the Charity Commission's list.

Where it works

Elsewhere

Throughout England and Wales

The places the charity told the Commission it works in.

Income and spending

The register has no income or spending figures for this charity.

Grants awarded to it, published on 360Giving

No grants to this charity appear in 360Giving data.

Only funders that publish their grants to 360Giving are included, and many do not. These are amounts funders awarded, which can differ from what the charity received in a given year, so they are shown apart from the accounts figures above.

Trustees

5 trustees run the charity.

Leia PerryChairAppointed 19 November 2025
Jayne Helena Hughes B.E.M.Appointed 19 November 2025
Joshua ParryAppointed 19 November 2025
Megan Samantha Julie Ann SimpsonAppointed 19 November 2025
Michelle HowAppointed 19 November 2025

Trustees are responsible in law for the charity. Names are as they appear on the public register.

About this charity

Charity number: 1215837
Status: Registered
Registered with the Commission: 19 November 2025
Governing document: CIO - FOUNDATION Registered 19 Nov 2025
Website: www.tommysbloomsyndromeuk.orgAs the charity gave it on the register.
Council area of its contact address: Carmarthenshire

Sources

Register details, income, spending, trustees and filing dates: Charity Commission for England and Wales, register of charities. Loaded by OpenEconomy on 2 November 2026.
Grants awarded: 360Giving open grants data, from funders that publish there, as loaded by OpenEconomy.

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